The Prostatitis Foundation is a non-profit organization formally
recognized on October 18, 1995 as an organization described in section 501
(c)3 on the Internal Revenue Code. This note is to let people know all
the things that the foundation has accomplished focusing on this past year
at the end of this document.
The above are brief summaries of events for the Prostatitis Foundation and
those from our efforts to promote the education and research of
prostatitis. All were done with the volunteer efforts of numerous
individuals whose contributions and insight have provided a strong footing
for the Prostatitis Foundation. We will try to give them credit when time
and space permits.
| September 26, 1994:
||The alt.support.prostate.prostatitis newsgroup (now replaced by
sci.med.prostate.prostatitis) is formed on the Internet by the eventual
founders of the Prostatitis Foundation.
| April 17-19, 1995:
||A delegation of members from the Prostatitis Foundation traveled to
Washington DC to ask the support of several important health
organizations, including the Foundation for Urologic Disease and the
American Prostate Society. Most importantly, they met with Dr. Leroy
Nyberg, Chief Urologist at the National Institutes of Health. From this
discussion, Dr. Nyberg decided to schedule the first ever symposium on
In addition, the delegation met with the subcommittees on Labor, Health
and Human Services and Education. Their goal was to ask Congress to
actively promote the study of and to provide the necessary resources for
| June 12, 1995:
||The Prostatitis World Wide Web page, http://www.prostatitis.org is
established on the Internet.
| June 20, 1995:
||A letter about prostatitis is published in the
| July 1995:
||An appropriations bill passed the House of Representatives providing
increased funding for the National Institute of Health. The report
accompanying the bill included language encouraging the National
Institutes of Digestive Diseases and Kidney Disorders (NIDDK) to conduct
research in the area of prostatitis.
The Prostatitis Foundation submitted its application to become a 501(c)3
to the IRS.
| October 1995:
||A letter to the Editor was published in
magazine from the
| October 3, 1995:
||The proposal for the creation of a new newsgroup called
sci.med.prostate.prostatitis passed. Its purpose is for the discussion
and dissemination of information about prostatitis.
| October 4, 1995:
||Letter about prostatitis research and funding was accepted in
letter to the editor.
| October 5-8, 1995:
||Representatives from the Foundation went to San Diego for the NIH and
Interstitial Cystitis Association Scientific Workshop and Annual Meeting.
| October 18, 1995:
||As a result of the extreme interest and participation found on the
newsgroup, the Prostatitis Foundation the first ever medical organization
originating from the Internet, was established. The Prostatitis
Foundation is formally recognized as a 501(c)3 corporation and granted
their confirmation as a tax free nonprofit foundation by the IRS.
| October 23, 1995:
||Over 180 individuals responded to a survey that was posted by the
Foundation on the newsgroups, alt.support.prostate.prostatitis and
sci.med.prostate.prostatitis. The data from these patients were to be
presented at the prostatitis symposium to be held by the NIH on December
| October 24, 1995:
||Dr. Byron Francis, State Epidemiologist of the Illinois Department of
Public Health, held a meeting in Chicago in order to develop a plan of
study for prostatitis. The Foundation and several physicians in the
Chicagoland area participated in the discussion.
| November 10, 1995:
||A voice mail service and information distribution center (1-888-891-4200)
was set up which would take the callers numbers and addresses. This
service would allow us to send them our informational packet about
| December 7-8, 1995:
||The first ever symposium on prostatitis was held by the NIH. It was
attended by seventy experts in urology, infectious disease, pathology,
infertility, andrology, veterinary medicine, and public health from around
| January 25, 1996:
||A letter was written to the staff assistant of Congressman Porter, Joanne
Orndorff to request that members of the Foundation be allowed to testify
in front of the Subcommittee on Appropriations, U.S. House of
| February 1996:
||A letter about prostatitis research was published in the journal,
| February 11, 1996:
||The Associated Press released a story about prostatitis and the
Prostatitis Foundation nationwide.
| February 13, 1996:
||The Foundation was given permission to speak in front of the
Appropriations Subcommittee on Labor, Health and Human Services and
Education on February 29, 1996 in order to request funding for prostatitis
| February 22, 1996:
||CNN called in response to a news release that was sent to them by the
Foundation. They interviewed the PF and stated the potential for an
article concerning prostatitis.
| February 24, 1996:
||The Foundation received a letter from the Department of Health and Human
Services, Food and Drug Administration in Rockville, Maryland. They wrote
in response to Dr. Brad Hennenfent,s letter regarding the role of
antibiotics in prostatitis and stated that they have referred the letter
to the proper individuals for consideration and action.
| February 24-25, 1996:
||Representatives from the Foundation attended the Chicago Men's conference
where they distributed literature and informational packets on
prostatitis. For their efforts, they were recognized and thanked.
| February 29, 1996:
||Another delegation from the Foundation went to Washington DC for three
days. After visiting the offices of several members of House and the
Senate, they were joined by Dr. Richard Alexander to testify before the
Subcommittee on Labor, Health and Human Services. Again, they met with
various people at the National Institutes of Health.
| March 14, 1996:
||The PR Newswire/News Service sent a news release for the Foundation to
papers nationwide. From that release, we have received numerous
inquiries, including most notably from the New York Times.
| March 15, 1996:
||Dr. Brad Hennenfent traveled to the Philippines to investigate a cure
offered by Dr. Feliciano . Dr. Hennenfent followed up with a retrospective
study on 35 patients of Dr. Feliciano and the longevity of their cures.
| April 3, 1996:
||Members of the Prostatitis Foundation and physicians and group leaders
that attended the NIH symposium met with Dr. Leroy Nyberg from the NIH and
Dr. John Kusek from the NIDDK in Chicago at Northwestern University. The
main objectives were to complete definitions on prostatitis and to prepare
grant writing applications. In addition, other goals of the meeting
included the development of long range plans to address problems
identified during the symposium workshops.
A Manila patient was invited by the Prostatitis Foundation to discuss
later that evening his trip to Manila and his apparent cure by the
treatment of Dr. Feliciano.
| April 21, 1996:
||A segment about prostatitis was featured on WABC TV Eyewitness News.
| April 29, 1996:
||The Foundation sent another press release via the PR Newswire that went
out to many local and national newspapers.
| May 1996:
||Dr. Curtis Nickel and Dr. Brad Hennenfent, with Dr. Feliciano planned a
joint research project to follow up on Dr. Feliciano,s patients.
| May 4-9, 1996:
||Delegates from the Foundation were sent to the American Urological
Association (AUA) Meeting in Orlando. During this time, many contacts
were made and renewed.
| May 31, 1996:
||Due to an increased workload, another computer system was installed at the
| June 1996:
||The Foundation was featured in
in the article
In addition, the
carried an extensive article,
research plan may rewrite book on prostatitis
. Generous credit was given
to the Foundation in our part in pushing for prostatitis research.
| June 11, 1996:
||Dr. Antonio Espinosa Feliciano Jr., who was invited to Chicago by the
Prostatitis Foundation was the principal speaker at the Grand Rounds at
Michael Reese Hospital. This event was sponsored by Dr. Sharifi of the
Department of Urology, University of Illinois. In addition, Dr. Feliciano
spoke to patients at the River North Hotel. His presentation was entitled
"Clinical Horizon" which was followed by a slide presentation entitled
"Prostatitis in the Philippines."
| July 27 - August 3, 1996:
||Members of the Prostatitis Foundation attended the 101st Annual Convention
of The National Medical Association at the Hyatt Regency in Chicago. The
Urology workshops featured presentations of very interesting scientific
papers. The estimated attendance for the convention was 7500.
| July 28 - August 1, 1996:
||We were also represented at the 48th annual AACC/CSCC Meeting and Clinical
Labratory Exposition at the McCormack Place in Chicago which had an
estimated attendance of 10,000. Many drug and labratory supply companies
| August 24-25, 1996:
||The Prostatitis foundation was represented at the Natural Health show
sponsored by the National Health Federation at the Ramada O,Hare in
| September 7, 1996:
|| Chicago Medicine
, a publication of The Chicago Medical Society and The
Medical Society of Cook County published an article called
Health care crisis called Prostatitis
written by Dr. Brad Hennenfent.
| September 22, 1996:
||One of the United Kingdom's largest national newspapers,
London featured The Prostatitis Foundation Homepage as one of the three
best sites for the week.
| October 1996:
||Urology magazine published an article entitled
I nternet Survey for
Chronic Prostatitis which was conducted over the Internet and compiled by
Dr. Richard B Alexander and Dave Trissel.
| November 4, 1996:
||The Prostatitis Foundation mailed an informational packet to three hundred
members of the press and media containing statistics formerly released by
the NIH, showing that the number of visits caused by prostatitis to be
greater than those caused by BPH and prostate cancer. Also a copy of the
article by Dr Alexander and Dave Trissel was enclosed.
| November 18-19, 1996:
||Tom Cruse, director of the Prostatitis Foundation and Dr. Joe Dankoff,
medical advisor to the foundation spoke at the Men's Health Programs
Conference at the Renaissance Cottonwoods Resort at Scottsdale, Arizona.
Their topic was "Decreasing The Cost of Treatment for Prostatitis through
Innovative New Treatment options."
| November 29, 1996:
||Tom Cruse director of The Prostatitis Foundation was the featured on RFD
Today, a general interest, hour long radio talk show carried on
approximately twenty stations in Illinois and Missouri.
| December 2, 1996:
||News Release was sent out about the study produced by
Richard Alexander, MD, and Dave Trissel called Chronic Prostatitis:Results of an Internet Surve y, for the October edition of UROLOGY 48:586-574,1996.
| December 5 1996:
||A mailing was done to 437 sports organizations,
including all professional and seme-professional sports teams in then USA
| December 7, 1996:
||A new release was sent out about The University of
Washington study entitled:
Chronic Pelvic Pains Represent the Most
Prominent Urogenital Symptoms of "Chronic Prostatitis,"
by John Krieger ,
KJ Egan, SO Ross, R Jacobs, and Richard Berger . The study appeared in
48: 715-722, November 1996. University of Washington contacts Sue
Ross RN, and John Krieger MD, can be reached at 206/543-3898. UROLOGY can
be reached via Ms. Janice Davis at 313/998-8333.
| December 14, 1996:
||A news release to over 1,000 news contacts was done
about prokaryotic DNA Sequences in Patients with Chronic Idiopathic
Prostatitis by Krieger, J. N., Riley D. E., Roberts, M. C., and Berger, R.
E., J. of Clin. Microbiol., 34(12):3120-3128, 1996. They found bacterial
16s rRNA in 77% of patients with "nonbacterial" prostatitis from perineal
prostate biopsy specimens in which skin contamination was controlled.
| December 28, 1996:
||The Prostatitis Foudation is gearing up to testify before
congress for the second time, and to testify in front of the Department of
Defense about prostatitis.
Our challenge is to reach those individuals who do not have access to our
educational material via the Internet and who cannot assist in the
research and cure of the condition.
Our mission statement directs our efforts to education of the prostate
patient and his family and to the promotion of research by the medical
community with the goal being the eradication of the disease.
The mission of the Prostatitis Foundation is to educate the public about the prevalence of prostatitis
and encourage and support research to find the cause and a cure for prostatitis.
We're sorry you are having to learn about prostatitis, but we're glad you came here, because we think we can help. Please be advised that the Prostatitis Foundation does
not warrant, support, sponsor, endorse, recommend or accept responsibility for any health care provider or any treatment or protocol performed by any heath care provider.