The Prostatitis Foundation

Chronology of The Prostatitis Foundation 1994-1996

 

The Prostatitis Foundation is a non-profit organization formally recognized on October 18, 1995 as an organization described in section 501 (c)3 on the Internal Revenue Code. This note is to let people know all the things that the foundation has accomplished focusing on this past year at the end of this document.
September 26, 1994: The alt.support.prostate.prostatitis newsgroup (now replaced by sci.med.prostate.prostatitis) is formed on the Internet by the eventual founders of the Prostatitis Foundation.
April 17-19, 1995: A delegation of members from the Prostatitis Foundation traveled to Washington DC to ask the support of several important health organizations, including the Foundation for Urologic Disease and the American Prostate Society. Most importantly, they met with Dr. Leroy Nyberg, Chief Urologist at the National Institutes of Health. From this discussion, Dr. Nyberg decided to schedule the first ever symposium on prostatitis.

In addition, the delegation met with the subcommittees on Labor, Health and Human Services and Education. Their goal was to ask Congress to actively promote the study of and to provide the necessary resources for prostatitis research.

June 12, 1995: The Prostatitis World Wide Web page, http://www.prostatitis.org is established on the Internet.
June 20, 1995: A letter about prostatitis is published in the Washington Post as an editorial.
July 1995: An appropriations bill passed the House of Representatives providing increased funding for the National Institute of Health. The report accompanying the bill included language encouraging the National Institutes of Digestive Diseases and Kidney Disorders (NIDDK) to conduct research in the area of prostatitis.

The Prostatitis Foundation submitted its application to become a 501(c)3 to the IRS.

October 1995: A letter to the Editor was published in Men's Health magazine from the Foundation.
October 3, 1995: The proposal for the creation of a new newsgroup called sci.med.prostate.prostatitis passed. Its purpose is for the discussion and dissemination of information about prostatitis.
October 4, 1995: Letter about prostatitis research and funding was accepted in Urology as a letter to the editor.
October 5-8, 1995: Representatives from the Foundation went to San Diego for the NIH and Interstitial Cystitis Association Scientific Workshop and Annual Meeting.
October 18, 1995: As a result of the extreme interest and participation found on the newsgroup, the Prostatitis Foundation the first ever medical organization originating from the Internet, was established. The Prostatitis Foundation is formally recognized as a 501(c)3 corporation and granted their confirmation as a tax free nonprofit foundation by the IRS.
October 23, 1995: Over 180 individuals responded to a survey that was posted by the Foundation on the newsgroups, alt.support.prostate.prostatitis and sci.med.prostate.prostatitis. The data from these patients were to be presented at the prostatitis symposium to be held by the NIH on December 7-8, 1995.
October 24, 1995: Dr. Byron Francis, State Epidemiologist of the Illinois Department of Public Health, held a meeting in Chicago in order to develop a plan of study for prostatitis. The Foundation and several physicians in the Chicagoland area participated in the discussion.
November 10, 1995: A voice mail service and information distribution center (1-888-891-4200) was set up which would take the callers numbers and addresses. This service would allow us to send them our informational packet about prostatitis.
December 7-8, 1995: The first ever symposium on prostatitis was held by the NIH. It was attended by seventy experts in urology, infectious disease, pathology, infertility, andrology, veterinary medicine, and public health from around the world.
January 25, 1996: A letter was written to the staff assistant of Congressman Porter, Joanne Orndorff to request that members of the Foundation be allowed to testify in front of the Subcommittee on Appropriations, U.S. House of Representatives.
February 1996: A letter about prostatitis research was published in the journal, Urology .
February 11, 1996: The Associated Press released a story about prostatitis and the Prostatitis Foundation nationwide.
February 13, 1996: The Foundation was given permission to speak in front of the Appropriations Subcommittee on Labor, Health and Human Services and Education on February 29, 1996 in order to request funding for prostatitis research.
February 22, 1996: CNN called in response to a news release that was sent to them by the Foundation. They interviewed the PF and stated the potential for an article concerning prostatitis.
February 24, 1996: The Foundation received a letter from the Department of Health and Human Services, Food and Drug Administration in Rockville, Maryland. They wrote in response to Dr. Brad Hennenfent,s letter regarding the role of antibiotics in prostatitis and stated that they have referred the letter to the proper individuals for consideration and action.
February 24-25, 1996: Representatives from the Foundation attended the Chicago Men's conference where they distributed literature and informational packets on prostatitis. For their efforts, they were recognized and thanked.
February 29, 1996: Another delegation from the Foundation went to Washington DC for three days. After visiting the offices of several members of House and the Senate, they were joined by Dr. Richard Alexander to testify before the Subcommittee on Labor, Health and Human Services. Again, they met with various people at the National Institutes of Health.
March 14, 1996: The PR Newswire/News Service sent a news release for the Foundation to papers nationwide. From that release, we have received numerous inquiries, including most notably from the New York Times.
March 15, 1996: Dr. Brad Hennenfent traveled to the Philippines to investigate a cure offered by Dr. Feliciano . Dr. Hennenfent followed up with a retrospective study on 35 patients of Dr. Feliciano and the longevity of their cures.
April 3, 1996: Members of the Prostatitis Foundation and physicians and group leaders that attended the NIH symposium met with Dr. Leroy Nyberg from the NIH and Dr. John Kusek from the NIDDK in Chicago at Northwestern University. The main objectives were to complete definitions on prostatitis and to prepare grant writing applications. In addition, other goals of the meeting included the development of long range plans to address problems identified during the symposium workshops. A Manila patient was invited by the Prostatitis Foundation to discuss later that evening his trip to Manila and his apparent cure by the treatment of Dr. Feliciano.
April 21, 1996: A segment about prostatitis was featured on WABC TV Eyewitness News.
April 29, 1996: The Foundation sent another press release via the PR Newswire that went out to many local and national newspapers.
May 1996: Dr. Curtis Nickel and Dr. Brad Hennenfent, with Dr. Feliciano planned a joint research project to follow up on Dr. Feliciano,s patients.
May 4-9, 1996: Delegates from the Foundation were sent to the American Urological Association (AUA) Meeting in Orlando. During this time, many contacts were made and renewed.
May 31, 1996: Due to an increased workload, another computer system was installed at the Foundation.
June 1996: The Foundation was featured in Men's Confidential in the article Healing the prostate.

In addition, the Urology Times carried an extensive article, NIDDK research plan may rewrite book on prostatitis . Generous credit was given to the Foundation in our part in pushing for prostatitis research.

June 11, 1996: Dr. Antonio Espinosa Feliciano Jr., who was invited to Chicago by the Prostatitis Foundation was the principal speaker at the Grand Rounds at Michael Reese Hospital. This event was sponsored by Dr. Sharifi of the Department of Urology, University of Illinois. In addition, Dr. Feliciano spoke to patients at the River North Hotel. His presentation was entitled "Clinical Horizon" which was followed by a slide presentation entitled "Prostatitis in the Philippines."
July 27 - August 3, 1996: Members of the Prostatitis Foundation attended the 101st Annual Convention of The National Medical Association at the Hyatt Regency in Chicago. The Urology workshops featured presentations of very interesting scientific papers. The estimated attendance for the convention was 7500.
July 28 - August 1, 1996: We were also represented at the 48th annual AACC/CSCC Meeting and Clinical Labratory Exposition at the McCormack Place in Chicago which had an estimated attendance of 10,000. Many drug and labratory supply companies were present.
August 24-25, 1996: The Prostatitis foundation was represented at the Natural Health show sponsored by the National Health Federation at the Ramada O,Hare in Chicago.
September 7, 1996: Chicago Medicine , a publication of The Chicago Medical Society and The Medical Society of Cook County published an article called The Ignored Health care crisis called Prostatitis written by Dr. Brad Hennenfent.
September 22, 1996: One of the United Kingdom's largest national newspapers, The Times , of London featured The Prostatitis Foundation Homepage as one of the three best sites for the week.
October 1996: Urology magazine published an article entitled I nternet Survey for Chronic Prostatitis which was conducted over the Internet and compiled by Dr. Richard B Alexander and Dave Trissel.
November 4, 1996: The Prostatitis Foundation mailed an informational packet to three hundred members of the press and media containing statistics formerly released by the NIH, showing that the number of visits caused by prostatitis to be greater than those caused by BPH and prostate cancer. Also a copy of the article by Dr Alexander and Dave Trissel was enclosed.
November 18-19, 1996: Tom Cruse, director of the Prostatitis Foundation and Dr. Joe Dankoff, medical advisor to the foundation spoke at the Men's Health Programs Conference at the Renaissance Cottonwoods Resort at Scottsdale, Arizona. Their topic was "Decreasing The Cost of Treatment for Prostatitis through Innovative New Treatment options."
November 29, 1996: Tom Cruse director of The Prostatitis Foundation was the featured on RFD Today, a general interest, hour long radio talk show carried on approximately twenty stations in Illinois and Missouri.
December 2, 1996: News Release was sent out about the study produced by Richard Alexander, MD, and Dave Trissel called Chronic Prostatitis:Results of an Internet Surve y, for the October edition of UROLOGY 48:586-574,1996.
December 5 1996: A mailing was done to 437 sports organizations, including all professional and seme-professional sports teams in then USA and Canada.
December 7, 1996: A new release was sent out about The University of Washington study entitled: Chronic Pelvic Pains Represent the Most Prominent Urogenital Symptoms of "Chronic Prostatitis," by John Krieger , KJ Egan, SO Ross, R Jacobs, and Richard Berger . The study appeared in Urology 48: 715-722, November 1996. University of Washington contacts Sue Ross RN, and John Krieger MD, can be reached at 206/543-3898. UROLOGY can be reached via Ms. Janice Davis at 313/998-8333.
December 14, 1996: A news release to over 1,000 news contacts was done about prokaryotic DNA Sequences in Patients with Chronic Idiopathic Prostatitis by Krieger, J. N., Riley D. E., Roberts, M. C., and Berger, R. E., J. of Clin. Microbiol., 34(12):3120-3128, 1996. They found bacterial 16s rRNA in 77% of patients with "nonbacterial" prostatitis from perineal prostate biopsy specimens in which skin contamination was controlled.
December 28, 1996: The Prostatitis Foudation is gearing up to testify before congress for the second time, and to testify in front of the Department of Defense about prostatitis.
The above are brief summaries of events for the Prostatitis Foundation and those from our efforts to promote the education and research of prostatitis. All were done with the volunteer efforts of numerous individuals whose contributions and insight have provided a strong footing for the Prostatitis Foundation. We will try to give them credit when time and space permits.

Our challenge is to reach those individuals who do not have access to our educational material via the Internet and who cannot assist in the research and cure of the condition.

Our mission statement directs our efforts to education of the prostate patient and his family and to the promotion of research by the medical community with the goal being the eradication of the disease.

 

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We're sorry you are having to learn about prostatitis, but we're glad you came here, because we think we can help. Please be advised that the Prostatitis Foundation does
not warrant, support, sponsor, endorse, recommend or accept responsibility for any health care provider or any treatment or protocol performed by any heath care provider.

© The Prostatitis Foundation
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