"I was desperate"
I developed a pain in my groin in the early 1970s and consulted with local
urologists. (I live in the country) They did cystoscopes and x-rays but said
they could not think what was causing it. By 1981 the pain had become
agonizing and I went to a senior neurologist in a major New York Hospital. He
diagnosed prostatitis on the spot and prescribed daily oral antibiotics. The
infection had become so deep that antibiotics gave me only a little relief.
Over the next two years I became resistant to all. I tried every kind of
treatment I could find including prostate massage, feedback, visits to a
psychologist, bladder washouts for cystitis, a Turp and finally a Radical
Turp. ( This latter involves deep surgery to remove as much of the prostate
wall as possible.) Nothing helped: the continuous excruciating pain left me
suicidal. Then after over 100 medical visits and treatments I discovered that
US surgeons used to remove the prostate in cases like mine and that outside
the US the same treatment was still provided in desperate cases. A senior
urologist in Canada who told me that if I were Canadian he would remove my
prostate but that he could not help me for fear of US lawsuits. He recommended
Europe. There, a senior Urological surgeon removed my prostate in 1986. The
pain disappeared immediately and has not returned. I am pleased with the
surgery and very grateful to the surgeon.
Incidentally, the surgeon warned me that my radical TURPs had left the
prostate wall very thin making his job unusually difficult. Do not allow
anyone to give you a Radical Turp hoping it will cure your prostatitis. It
won't. The years of daily antibiotics left me with gut pain but that is
Prostatitis Foundation Comments: this procedure is done so seldom that there
is little evidence for its success or failure in prostatitis. Remember the
foundation does not endorse any doctor, medicine or treatment protocol. Only
after you feel that you have failed every other option should you consider
this one. Consult with your physician and get a second opinion and perhaps
even a third opinion.
We would be pleased to hear from anyone else with experience who would share
that information with us.